The Progeria Research Foundation (PRF) was established in 1999 by Drs. Leslie Gordon and Scott Berns, the parents of a child with Progeria, along with many dedicated friends and family who saw the need for a medical research resource for the doctors, patients, and families of those with Progeria. Since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. PRF has developed programs and services to aid those affected by Progeria and the scientists who conduct Progeria research. Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years.
The Progeria Research Foundation's (PRF) mission is to find treatments and the cure for Progeria and its aging-related disorders, including heart disease. Progeria is a fatal, ""rapid aging"" disease that afflicts children, who die of heart disease at an average age of 14 years. PRF was founded in 1999 in response to the complete lack of resources and research on Progeria, and is the only organization in the world solely dedicated to discovering treatments and the cure for this devastating condition.
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Progeria Research Foundation Inc. PO Box 3453, Peabody, MA, 01961
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