The Marfan Foundation Inc.

Know the Signs. Fight for Victory.

Our Story


The Marfan Foundation’s mission is to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions. The Foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.

The Marfan Foundation continues to expand to better serve the community affected by genetic conditions related to Marfan syndrome. In October 2019, the Foundation launched The VEDS Movement to provide research, education, and support for the community of people with Vascular Ehlers-Danlos syndrome (VEDS), a genetic condition related to Marfan syndrome. The Loeys-Dietz Syndrome Foundation became a division of The Marfan Foundation on July 1, 2020, and the GenTAC Alliance, the community of stakeholders committed to advancing the understanding of genetically induced thoracic aortic diseases and their treatment, will follow suit on October 1, 2020.

The Marfan Foundation's mission is to save lives and improve the quality of life of individuals with Marfan syndrome, Loeys-Dietz syndrome, VEDS (vascular Ehlers-Danlos syndrome), and other genetic aortic conditions.

Get Involved


You can impact The Marfan Foundation Inc. by joining our Footprints journey and by becoming a fundraiser. Join a campaign and download the Charity Footprints' free mobile fitness application and #GetFitGiveBack.

Contact Information


The Marfan Foundation Inc.
The Marfan Foundation Inc.
22 Manhasset Ave., Port Washington, NY, 11050