US Hereditary Angioedema Association

Stepping Forward Together

Our Story


The HAEA is a patient advocacy and research organization committed to actively engaging our community in a wide variety of grassroots activities that promote disease education and awareness. We provide personalized services to address the unique needs of HAE patients and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the patient quality of life through improving diagnosis and knowledge of the disease, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering patient access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

Get Involved


You can impact US Hereditary Angioedema Association by joining our Footprints journey and by becoming a fundraiser. Join a campaign and download the Charity Footprints' free mobile fitness application and #GetFitGiveBack.

Contact Information


US Hereditary Angioedema Association
US Hereditary Angioedema Association
10560 Main Street, Suite PS40 Fairfax City, VA 22030