My Appeal
Your charitable contribution to the US HAEA helps our organization provide a wide range of services to patients and their families. With your support, we can strengthen our services and programs, improve HAE education and awareness, and expand HAE research. Contributions to the HAEA are tax-deductible.
Fundraising for the Stepping Forward Together Virtual Walk will support three of our main programs:
1. The Pam King HAEA Scholarship Program, which offers college tuition grants to HAE patients
2. The Chris Whalen Compassion Fund, which offers financial assistance for patients in need who must travel to see an HAE medical specialist
3. The HAE Research for a Cure, which funds the HAEA Scientific Registry and research initiatives
My Progress
Mark is
walking
120 miles and raising funds for US Hereditary Angioedema Association. Please show your support and donate generously.
122.3
MILES done
120 miles
My Cause
The Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
About the Organization:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
