Lynsey Ansaldo's Fundraiser
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My Appeal
I was diagnosed with Hereditary Angioedema when I was a teenager after years of having extreme painful and sudden swelling episodes. For many years it was thought to be an allergic reaction, but it was eventually found out to be a blood disease that effects histamine like reactions in my body. The attacks that I have are debilitating and brings me to extreme pain and potentially life threatening if the swelling episode is near my throat. Because of your donations, in the last few years research has developed a new life saving drug that reduced my swelling attacks by 90%! And now I don’t have to live in fear anymore.
My Progress
Lynsey is walking 120 miles and raising funds for US Hereditary Angioedema Association. Please show your support and donate generously.
0.0 MILES done
120 miles
My Cause
The Mission: To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
About the Organization: The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Recent Donations
L
$ 50
For love and health❤️
KA
$ 25
Sending you love Lynsey 😘
SB