Jamie Silver's Fundraiser
View Jamie's Team
My Appeal
Michaela and I are running a virtual 1-mile Fun Run in honor of Jackson. Please join us by signing up for the 1st ever Virtual 5K and Fun run or making a donation to support the work EB Research Partnership is doing to help Jackson and all his fellow EB warriors. We will run until one day he can run too. Thanks!
My Progress
Jamie is running 1 miles and raising funds for EB Research Partnership. Please show your support and donate generously.
73.5 MILES done
1 miles
My Cause
The Mission: EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
About the Organization:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.
EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Recent Donations
$ 100
Sending love ❤️
$ 100
Thinking of you guys
$ 50
Sending good wishes to Jackson and hope he feels better after the iron infusion! Good luck with your walk!
$ 100
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Good luck. Love you alll tons.
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XO!
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Good Luck!
$ 100
Jamie - you are amazing! I hope Jackson is feeling better!
$ 750
good luck and lots of love to everyone
$ 100
Good luck Jamie! Much love to the family. Neena
$ 100
Hope to see you in Nov, Jamie! Hi, Jackson!
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Good luck! Sending hugs to Jackson.
$ 500
Levy's sending lots of love
$ 1,000
Go Jamie!!! Lots of love from Stephen, Emily, Huxley and Quinn xoxox
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Go Silver’s
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💞❤️💞❤️
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Love from all of us here, A x
$ 50
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Xoxo
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For the love of Jackson and family
$ 150
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Do great!
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💜🙏🏻
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❤️
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❤️❤️❤️❤️
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Sending hugs to all of you!!
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You go ladies!
$ 500
so proud of all of you! love and kisses
$ 18
Go Silver girls! ❤️
$ 36
I’m so proud of you. I love you to pieces!
