Laurie Hheapes's Fundraiser
My Appeal
HI friends, during this time I've decided to do another run for EB!!! It is a 5K but hope to build miles both walking and running up to the week of the race. Any donation would be great!! my goal is $150 Thank you and stay well!
My Progress
Laurie is running 3 miles and raising funds for EB Research Partnership. Please show your support and donate generously.
81.2 MILES done
3 miles
My Cause
The Mission: EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
About the Organization:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.
EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Recent Donations
MA
$ 26
Trying to help reach the new $ 50,000 goal since we crushed 30k. Thanks for running Laurie.
MC
$ 25
Good luck!!
RL
$ 15
You got this !!!!!
CC
$ 100
Have a great run! Love you❤️
MA
$ 25
Supporting your energy for a cause dear to my heart. Gentle hugs. Thank you. Be safe.
MM
$ 35
Good luck Laurie!!
EK
$ 10
Go Laurie!
KM
$ 25
Keep up the great work fighting for this cause!
KS
$ 25
LC
$ 25
Good Luck Laurie! You got this❤️❤️
SC
$ 50
You got this Laurie!! Xoxo
MS
$ 25
MB
$ 50
A
$ 25
LD
$ 25
Go Laurie!
DH
$ 25
KL
$ 10
Love you Laurie !! Miss you!! Good luck
LH