Jill Snowney's Fundraiser
View Jill's Team
My Appeal
Anyone who knows us knows there is nothing we won't do for each other and especially our Sabina she is such an amazing example of strength and beauty
Together we can help find a cure for EB!
My Progress
Jill is running 20 miles and raising funds for EB Research Partnership. Please show your support and donate generously.
24.8 MILES done
20 miles
My Cause
The Mission: EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
About the Organization:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.
EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Recent Donations
J&
$ 25
Supporting Jill's Fundraiser and Team Sabina.
SC
$ 500
DA
$ 50
MG
$ 25
SA
$ 25
MH
$ 100
MA
$ 100
Go Mimi!
CA
$ 250
KD
$ 50
DC
$ 250
Papa loves Sabina pretty much more than anything ever❤️
JS