Connie Shaw's Fundraiser
My Appeal
This very important organization helped me navigate various hurdles I encountered after I had a severe attack. (I had only experienced mild attacks for the past 25 years.) After 5 days in the hospital in early May, and after mis-diagnosis for those 5 days, a doctor that was suggested through this organization was able to help me figure it all out (and also helped me navigate around the insurance mayhem). HAEA has provided me fantastic support.
My Progress
Connie is walking 100 miles and raising funds for US Hereditary Angioedema Association. Please show your support and donate generously.
80.0 MILES done
100 miles
My Cause
The Mission: To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
About the Organization: The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Recent Donations
TR
$ 100
Love you Connie!
CS