TEAM PAGE
teamwork makes the dream work
READ MORE ABOUT THE CAUSE
------ x ------
About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
------ x ------
Christine (ADMIN)
$ 30 raised of $ 100
242 miles completed of 120
Ianice
$ 25 raised of $ 100
102 miles completed of 100
Nicole
$ 25 raised of $ 100
0 miles completed of 120
Mike
$ 50 raised of $ 500
136 miles completed of 120
Lisa
$ 0 raised of $ 100
55 miles completed of 120
Michelle
$ 100 raised of $ 100
115 miles completed of 120
Troyce
$ 200 raised of $ 100
0 miles completed of 120
Lois
$ 100 raised of $ 100
116 miles completed of 120
Sherry
$ 100 raised of $ 100
177 miles completed of 150
Sally
$ 30 raised of $ 50
8 miles completed of 120
Carolyn
$ 0 raised of $ 100
29 miles completed of 120
Mimi
$ 0 raised of $ 100
0 miles completed of 120
Suzanne
$ 0 raised of $ 25
79 miles completed of 120
Skyler
$ 0 raised of $ 100
0 miles completed of 120
NIcole
$ 0 raised of $ 25
7 miles completed of 7
CONTRIBUTORS
------ x ------
$ 30
$ 25
$ 25
$ 50
$ 100
$ 100
$ 100
$ 100
$ 25
$ 25
$ 25
$ 25
$ 30
