TEAM PAGE
teamwork makes the dream work
Team Luke/Puffy Posse
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READ MORE ABOUT THE CAUSE
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About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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amanda (ADMIN)
$ 1,675 raised of $ 500
110 miles completed of 120
Mary Lou
$ 0 raised of $ 100
0 miles completed of 120
Steve
$ 0 raised of $ 25
0 miles completed of 120
Luke
$ 0 raised of $ 100
0 miles completed of 120
Stevie
$ 25 raised of $ 25
2 miles completed of 120
Deborah
$ 0 raised of $ 100
0 miles completed of 120
CONTRIBUTORS
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