TEAM PAGE
teamwork makes the dream work
READ MORE ABOUT THE CAUSE
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About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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Matt (ADMIN)
$ 100 raised of $ 100
129 miles completed of 120
Chris
$ 0 raised of $ 100
95 miles completed of 120
Von
$ 0 raised of $ 100
216 miles completed of 120
Melissa
$ 0 raised of $ 100
177 miles completed of 120
Julie
$ 0 raised of $ 200
123 miles completed of 120
Gwen
$ 0 raised of $ 120
43 miles completed of 120
Catherine
$ 0 raised of $ 100
62 miles completed of 120
Kurt
$ 100 raised of $ 100
502 miles completed of 120
Mark
$ 0 raised of $ 100
122 miles completed of 120
Manny
$ 0 raised of $ 100
63 miles completed of 120
CONTRIBUTORS
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$ 100
$ 100
