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US Hereditary Angioedema Association
About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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Meagan (ADMIN)
$ 0 raised of $ 50
121 miles completed of 120
Jennie
$ 0 raised of $ 100
0 miles completed of 120
Kristi
$ 100 raised of $ 50
78 miles completed of 120
Ann
$ 0 raised of $ 100
185 miles completed of 120
Claudia
$ 0 raised of $ 100
147 miles completed of 120
Jonathan
$ 100 raised of $ 100
137 miles completed of 120
Corey
$ 0 raised of $ 100
0 miles completed of 120
Tom
$ 0 raised of $ 100
0 miles completed of 120
Tom
$ 20 raised of $ 100
0 miles completed of 120
Terah
$ 0 raised of $ 100
153 miles completed of 120
Ilean
$ 0 raised of $ 100
34 miles completed of 120
Shanna
$ 0 raised of $ 100
251 miles completed of 120
CONTRIBUTORS
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