TEAM PAGE
teamwork makes the dream work
READ MORE ABOUT THE CAUSE
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US Hereditary Angioedema Association
About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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Tracie (ADMIN)
$ 100 raised of $ 100
135 miles completed of 120
Anne
$ 0 raised of $ 100
49 miles completed of 120
Julie
$ 0 raised of $ 100
5 miles completed of 120
Bob
$ 0 raised of $ 100
79 miles completed of 120
Meredith
$ 0 raised of $ 100
0 miles completed of 120
Jeff
$ 100 raised of $ 100
2 miles completed of 120
Jen
$ 0 raised of $ 100
23 miles completed of 120
Nicole
$ 0 raised of $ 100
70 miles completed of 120
Christopher
$ 0 raised of $ 100
83 miles completed of 120
Patricia
$ 0 raised of $ 100
1 miles completed of 120
Sherri
$ 0 raised of $ 100
139 miles completed of 120
Gregg
$ 0 raised of $ 100
10 miles completed of 120
Sheree
$ 0 raised of $ 25
0 miles completed of 120
Jessica
$ 0 raised of $ 100
145 miles completed of 120
Juliana
$ 0 raised of $ 100
66 miles completed of 120
Matt
$ 50 raised of $ 50
77 miles completed of 120
John
$ 0 raised of $ 50
0 miles completed of 120
Matt
$ 0 raised of $ 25
1 miles completed of 120
CONTRIBUTORS
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$ 100
$ 100
$ 50