TEAM PAGE

teamwork makes the dream work

Team PTRB
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Team PTRB

FITNESS GOAL
TARGET: 2,160 miles
FUNDRAISING GOAL
TARGET: $ 1,550

READ MORE ABOUT THE CAUSE
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US Hereditary Angioedema Association
US Hereditary Angioedema Association
About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

TEAM MEMBERS
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Tracie    (ADMIN)

$ 100 raised of $ 100
135 miles completed of 120

Anne

$ 0 raised of $ 100
49 miles completed of 120

Julie

$ 0 raised of $ 100
5 miles completed of 120

Bob

$ 0 raised of $ 100
79 miles completed of 120

Meredith

$ 0 raised of $ 100
0 miles completed of 120

Jeff

$ 100 raised of $ 100
2 miles completed of 120

Jen

$ 0 raised of $ 100
23 miles completed of 120

Nicole

$ 0 raised of $ 100
70 miles completed of 120

Christopher

$ 0 raised of $ 100
83 miles completed of 120

Patricia

$ 0 raised of $ 100
1 miles completed of 120

Sherri

$ 0 raised of $ 100
139 miles completed of 120

Gregg

$ 0 raised of $ 100
10 miles completed of 120

Sheree

$ 0 raised of $ 25
0 miles completed of 120

Jessica

$ 0 raised of $ 100
145 miles completed of 120

Juliana

$ 0 raised of $ 100
66 miles completed of 120

Matt

$ 50 raised of $ 50
77 miles completed of 120

John

$ 0 raised of $ 50
0 miles completed of 120

Matt

$ 0 raised of $ 25
1 miles completed of 120

CONTRIBUTORS
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$ 100

Tracie Myers

 

$ 100

Anonymous

 

$ 50

Matt Rothwell