TEAM PAGE

teamwork makes the dream work

Birthday Miles for Thomas!
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FITNESS GOAL
TARGET: 45 miles
FUNDRAISING GOAL
TARGET: $ 2,550

READ MORE ABOUT THE CAUSE
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EB Research Partnership
EB Research Partnership
About:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.

EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.

EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Mission:
EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

TEAM MEMBERS
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Marie    (ADMIN)

$ 550 raised of $ 500
142 miles completed of 7

Deborah

$ 100 raised of $ 150
0 miles completed of 3

Colleen

$ 50 raised of $ 150
0 miles completed of 3

Ashley

$ 70 raised of $ 150
0 miles completed of 3

Annie

$ 100 raised of $ 150
0 miles completed of 3

Michelle

$ 120 raised of $ 150
0 miles completed of 3

Emma

$ 35 raised of $ 150
0 miles completed of 3

Michael & Debbie

$ 250 raised of $ 150
44 miles completed of 3

Carrie

$ 100 raised of $ 100
4 miles completed of 3

Joan

$ 370 raised of $ 150
12 miles completed of 3

Vanessa

$ 50 raised of $ 150
0 miles completed of 3

Loryn

$ 50 raised of $ 150
0 miles completed of 1

Melissa

$ 100 raised of $ 150
0 miles completed of 1

Chris

$ 50 raised of $ 150
149 miles completed of 3

Cassandra

$ 50 raised of $ 150
4 miles completed of 3

CONTRIBUTORS
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$ 35

Marie

 

$ 50

Colleen

 

$ 70

Ashley

 

$ 100

Annie

 

$ 120

Michelle

 

$ 35

Emma

 

$ 250

Michael & Debbie

 

$ 100

Carrie

 

$ 100

Deborah

 

$ 100

Joan

 

$ 50

Vanessa

 

$ 50

Loryn

 

$ 100

Melissa

 

$ 50

Chris

 

$ 50

Cassandra

 

$ 50

Diane and Mark Perino

 

$ 100

Meghan Whalen

 

$ 25

Anonymous

 

$ 25

Anonymous

 

$ 100

Janet DiPalma

 

$ 50

Anonymous

 

$ 115

CASSANDRA E CLARK

 

$ 50

Nicole Walker

 

$ 20

Marie

 

$ 50

Bob and Margaret Post

 

$ 50

Angela Langlais

 

$ 50

Karen Golden

 

$ 50

Donald langlais

 

$ 50

Cassandra