TEAM PAGE
teamwork makes the dream work
Sabina Strength !
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READ MORE ABOUT THE CAUSE
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About:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.
EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Mission:
EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
TEAM MEMBERS
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Nick (ADMIN)
$ 1,260 raised of $ 2,500
75 miles completed of 100
Taylor
$ 3,975 raised of $ 750
121 miles completed of 50
Kaitlin
$ 300 raised of $ 150
225 miles completed of 100
Amanda
$ 150 raised of $ 150
80 miles completed of 3
Kate
$ 300 raised of $ 150
42 miles completed of 3
Cori
$ 30 raised of $ 150
126 miles completed of 1
Alex
$ 180 raised of $ 150
24 miles completed of 3
Tatiana
$ 150 raised of $ 150
38 miles completed of 20
Annabeth
$ 55 raised of $ 150
13 miles completed of 26
Joseph
$ 4,303 raised of $ 500
199 miles completed of 3
Kara
$ 235 raised of $ 150
0 miles completed of 1
Dawn
$ 395 raised of $ 500
66 miles completed of 30
Jill
$ 1,425 raised of $ 1,000
25 miles completed of 20
Brian
$ 595 raised of $ 1,000
36 miles completed of 20
Riley
$ 170 raised of $ 150
122 miles completed of 35
Kathleen
$ 20 raised of $ 150
35 miles completed of 3
Matthew
$ 130 raised of $ 150
3 miles completed of 3
James
$ 25 raised of $ 150
0 miles completed of 1
Michael
$ 70 raised of $ 150
0 miles completed of 1
Brian
$ 150 raised of $ 150
4 miles completed of 6
Miriam
$ 20 raised of $ 150
173 miles completed of 3
Sheila
$ 20 raised of $ 150
0 miles completed of 3
Jacob
$ 50 raised of $ 150
0 miles completed of 3
Dylan
$ 90 raised of $ 150
12 miles completed of 3
Jill
$ 255 raised of $ 150
23 miles completed of 25
Bill
$ 100 raised of $ 150
0 miles completed of 1
Roberta
$ 20 raised of $ 150
0 miles completed of 1
Madison
$ 35 raised of $ 150
2 miles completed of 3
Matt
$ 20 raised of $ 150
2 miles completed of 3
Brandon
$ 20 raised of $ 150
0 miles completed of 3
Ashley
$ 30 raised of $ 150
0 miles completed of 1
Alda
$ 30 raised of $ 150
15 miles completed of 3
Rhonda
$ 50 raised of $ 150
158 miles completed of 1
Katherine
$ 35 raised of $ 150
74 miles completed of 3
Olivia
$ 35 raised of $ 150
0 miles completed of 3
Anne
$ 50 raised of $ 150
105 miles completed of 3
Carrie
$ 70 raised of $ 150
16 miles completed of 30
Tyler
$ 100 raised of $ 150
18 miles completed of 1
Kyra
$ 50 raised of $ 150
4 miles completed of 10
Jacob
$ 30 raised of $ 150
2 miles completed of 1
JP
$ 20 raised of $ 150
0 miles completed of 3
Austin
$ 30 raised of $ 150
0 miles completed of 3
Tyler
$ 50 raised of $ 150
0 miles completed of 1
Zachery
$ 30 raised of $ 150
0 miles completed of 1
Cyndi
$ 50 raised of $ 50
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michael
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0 miles completed of 3
Daniel
$ 50 raised of $ 150
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Zachary
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Weston
$ 50 raised of $ 150
39 miles completed of 3
Ryan
$ 50 raised of $ 150
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Keddy
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61 miles completed of 3
Jack
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0 miles completed of 3
Jessica
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98 miles completed of 3
Sean
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0 miles completed of 3
Kelly
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0 miles completed of 3
Kevin
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Donald
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0 miles completed of 1
Becca
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Nicole
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Bobby
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Alex
$ 50 raised of $ 150
0 miles completed of 1
Kayla
$ 120 raised of $ 150
66 miles completed of 3
Aubrey
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5 miles completed of 3
Brinn
$ 20 raised of $ 150
9 miles completed of 3
Reilly
$ 20 raised of $ 150
20 miles completed of 3
Aron L
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1 miles completed of 3
Kelly
$ 50 raised of $ 150
0 miles completed of 3
CONTRIBUTORS
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