TEAM JESS
teamwork makes the dream work
READ MORE ABOUT THE CAUSE
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About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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Jess Dean (ADMIN)
$ 0 raised of $ 100
102 miles completed of 100
Brooke Williams
$ 0 raised of $ 100
100 miles completed of 100
Addison Soukup
$ 0 raised of $ 100
68 miles completed of 100
Deborah Myers
$ 200 raised of $ 100
173 miles completed of 100
William Myers
$ 0 raised of $ 100
100 miles completed of 100
Karen Kenyon
$ 0 raised of $ 100
52 miles completed of 100
Britnee Schneck
$ 0 raised of $ 100
0 miles completed of 100
Eliana Dean
$ 0 raised of $ 100
97 miles completed of 100
Steve Dean
$ 0 raised of $ 100
31 miles completed of 100
Nick Bly
$ 0 raised of $ 100
82 miles completed of 100
Samantha Cohen
$ 100 raised of $ 100
67 miles completed of 100
CONTRIBUTORS
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