'Steps for Neutropenia' is a virtual race to connect your family and friends across the world to help raise awareness about neutropenia and raise funds to keep it strong. Your contributions will enable us to provide education, support, and connections to experts for children and adults with chronic neutropenia which is often a trying journey marked by baffling infections, emergency room visits, and the desperate search for a physician who understands. The National Neutropenia Network depends on support from the friends and families of those whose lives have been forever changed and challenged by this rare disease.
Registration begins Mar 1. The virtual event takes place anywhere-wherever you are and takes place from April 1, 2020 through April 30, 2020. Set a target to reach 10,000 steps each day! You can run, walk, swim, bike, dance, knit, read-create your own path to supports those with neutropenia and the network stay strong!
Our goal is to connect with 2,000 friends and raise $15,000.
Choose your favorite activity and connect with your family and friends! You can create a team as well and ask them to join and support this great cause. Feel free to choose any activity of your choice-walking, swimming, knitting, reading, etc. We want everyone to be able to join in the fun!
To get started:
1. Register for 'Steps for Neutropenia'. The registration fee to participate is $30/person. We are grateful for your participation and for making a difference.
2. Wear a Fitbit? Apple watch? Sync with your steps to capture them throughout the month. Don't worry if you do not, you can use the Charity Footprints app to add your steps or simply add your workout manually!
3. Track your progress. Our goal is for each participant to reach out to at least 10 family and friends and tell them about neutropenia and support our great cause.
4.In addition, we want to reach our fundraising goal of $15,000 to support on-going programs and provide financial assistance grants for future conferences.
For participants that fundraise at least $150 for 'Steps for Neutropenia', you will receive a key chain from the National Neutropenia Network.
5. Share with family & friends. You can participate as an individual or as part of a team. Once you have created your individual or team page, share with everyone and help us meet our goals.
For more information on this rare condition, please visit our website: www.neutropenianet.org.
Raise awareness and support for those who suffer from neutropenia!
Track workouts anywhere & anytime and complete goal.
ABOUT THE ORGANIZATION
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NATIONAL NEUTROPENIA NETWORK INC.
The mission of the National Neutropenia Network is to promote awareness, education, and research, and to provide a support system for patients with severe chronic neutropenia (SCN) and their families through a national resource network.
The funds raised will be used for our current programming, raising awareness about Neutropenia, and the Financial Assistance Grants for the future conferences.
The National Neutropenia Network (NNN) exists to help those who suffer from neutropenia. The diagnosis of this rare condition is often a trying journey marked by baffling infections, emergency room visits, and the desperate search for a physician who understands.
The NNN is there to help individuals and families through the following:
Programs that bring patients together for mutual support;
Conference where top experts share the latest research and protocols;
Informational website including videos and emergency room protocol cards;
Raising awareness about this rare condition so patients do not feel so isolated; and
Connecting with physicians and medical professionals about Neutropenia.
Essentially, the NNN exists to help individuals and families impacted by neutropenia to live the healthiest and most fulfilling life possible. Thank you for your support.
FREQUENTLY ASKED QUESTIONS
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What is Charity Footprints?
Charity Footprints is a social enterprise that connects fitness and charitable giving. We empower people just like you, to get fit & give back.
Our Virtual Races allow non-profits to challenge their patrons to run, walk or ride and raise funds just as they would in a fundraising walkathon. The best part - charities save over 45% in event and logistical costs. So, the dollars that you pay to register or fundraise, go farther.
What is the campaign registration fee?
Campaign registration fee is the amount that you'll need to pay to enroll in this virtual race. This fee (less transaction charges) will go to the non-profit running this campaign as a donation.
The registration fee along with the funds raised through your individual fundraising page will enable the non-profit to fund various programs and pursue their organization's mission.
How can I create my fundraising page?
Well, you wouldn't have to create a separate fundraising page. Once you register for this campaign, we'll give you the link to your fundraising page.
While registering for the campaign, select the team you'd like to join or create a new team and invite others to #GetFitGiveBack with you. If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.
I am an international donor (non-US), what are my donation charges and tax-deductibility?
All donations are made in US dollars, so the donations may be levied an exchange rate fee via your bank. Donors will want to connect with their bank to determine exactly what that fee may be. Additionally, international donors will need to reach out to a tax professional to discuss if and how tax deductibility will apply to their donation.
Who can sponsor my fundraising efforts?
The short answer is - everyone. The fundraising research shows that the number one reason for people not donating is that they weren't asked to.
That said, there are things you can do to attract people to sponsor you. Adding a picture to your fundraising page, telling potential donors why this cause is so personal to you, sharing your fundraising page on social media, email, and chat groups.
Last, if your employer has a gift matching program, check with the human resources department to support your favorite cause as well.
Who can I contact if I need help?
You can contact us any time if you need help. We love hearing from our users so please don't hesitate to write to us about issues, suggestions, or to just say hi. You can also contact the non-profit administrator directly if you would like.
How do I change or switch my team?
If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.
CHARITY FOOTPRINTS, INC.
We're committed to making this world healthy, generous & happy by promoting fitness and encouraging charitable giving.