NATIONAL TAY SACHS AND ALLIED DISEASES ASSOC OF DELAWARE VALLEY

Love only grows by sharing. You can only have more for yourself by giving it away to others. ~ Brian Tracy
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National Tay Sachs and Allied Diseases Assoc of Delaware Valley
National Tay Sachs and Allied Diseases Assoc of Delaware Valley
ABOUT:
NTSAD-DV’s goal is to ensure that all at-risk adults who may be carriers for the Tay-Sachs or Canavan gene learn about these diseases, have medically accurate carrier screening available and accessible to them, and receive the proper genetic counseling to make informed decisions for a healthy family.

We strive to achieve these goals through: sponsoring year round free screening for Tay-Sachs and Canavan diseases; aggressive public awareness and information campaigns; free educational materials and public speakers; maintenance of a repository of specialized knowledge; serving as a referral network and resource center for affected families and couples at-risk, and advocacy for prevention. NTSAD-DV is funded through private foundation grants, corporate sponsorships, and voluntary contributions. A volunteer Board of Directors governs National Tay-Sachs & Allied Diseases Association of Delaware Valley. Programs and services are implemented by Board members, staff, and friends and supporters in the community.

OUR MISSION:
National Tay-Sachs & Allied Diseases Association of Delaware Valley is a non-profit voluntary health agency dedicated to the prevention and ultimate elimination of Tay-Sachs disease, Canavan disease, and related lysosomal storage diseases (the allied diseases).