Michael Hund's Fundraiser
My Appeal
A life-threatening rare disease impacting the body's largest organ: the skin, it is estimated that 500,000 people worldwide have EB. Children with EB are called Butterfly Children because their skin is as fragile as the wings of a butterfly. They face severe pain, wounds (both internal and external), and a grueling daily bandaging process. Their life-expectancy is cut devastatingly short. There is currently no treatment or cure for EB, but we at EBRP are dedicated to changing that as rapidly as possible.
We have made so much progress, curing EB is not an "If", however only a "When". Thank you for supporting my run and helping accelerate life-saving treatments and cures for EB.
My Progress
Michael is running 20 miles and raising funds for EB Research Partnership. Please show your support and donate generously.
4.0 MILES done
20 miles
My Cause
The Mission: EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
About the Organization:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.
EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Recent Donations
MF
$ 500
CH
$ 50
MH
$ 50
MH
