Denis Sosinskiy's Fundraiser
My Appeal
Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people. I was lucky to be diagnosed with it early and always have had an access to required medication. However, many HAE patients still need support and will benefit a lot from better public awareness. With your support, HAEA (US HAE association) can strengthen their services and programs, improve HAE education and awareness, and expand HAE research.
Funds raised through the 2020 HAE IN-MOTION® Virtual Challenge will support the following three programs:
* The Pam King HAEA Scholarship Program, which offers college tuition grants to HAE patients
* The Chris Whalen HAEA Compassion Fund, which offers financial assistance for patients in need who must travel to see an HAE medical specialist
* The HAEA Research Fund, which supports a variety of research initiatives including the HAEA Scientific Registry
My Progress
Denis is biking 150 miles and raising funds for US Hereditary Angioedema Association. Please show your support and donate generously.
88.4 MILES done
150 miles
My Cause
The Mission: To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
About the Organization: The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Recent Donations
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