Emmalee Shapiro's Fundraiser
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My Appeal
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My Progress
Emmalee is walking 450 miles and raising funds for The Multiple System Atrophy Coalition Inc.. Please show your support and donate generously.
412.0 MILES done
450 miles
My Cause
The Mission:
The Multiple System Atrophy ("MSA") Coalition is a 501(c)(3) charitable organization with a 30-year history of devotion to improving the quality of life and building hope for people affected by MSA through a four-pillar mission:
• Providing patients and caregivers with trusted and compassionate emotional support
• Educating patients, care-partners and healthcare professionals with credible, critically important and relevant information
• Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure
• Building a sense of community by connecting and unifying people affected by MSA.
About the Organization:
The Multiple System Atrophy Coalition® is a positive beacon of hope standing up to a little known, rare, insidious disorder. Made up of dedicated volunteers, The MSA Coalition has a primary purpose of assisting researchers to find a cure. In the meantime, The Coalition also provides much needed patient and caregiver support, educational resources, and advocacy to create awareness and to fight for issues important to the MSA community.
MSA Research Funding:
In 2011 The MSA Coalition established a dedicated Multiple System Atrophy Research Fund and a MSA research grant program. In 2013-2014 the inaugural round of research grants were reviewed and awarded to five MSA research projects totaling $219,000 in funding. To ensure that the most promising research is funded, The Coalition has recruited a world-class scientific advisory board (SAB) made up of eminent MSA researchers from around the world.
Support, Education and Advocacy:
The Multiple System Atrophy Coalition was originally organized in 1989 as the Shy-Drager Syndrome/Multiple System Atrophy Support Group to respond to the needs of those affected by this rare neurodegenerative disorder. The cornerstone of the organization’s offered services has always been the annual patient/caregiver conference. This conference has grown more popular year by year as it provides a very important opportunity to meet others in similar circumstances and to hear the latest news from expert healthcare providers and scientists.
For on-going support, there is also a volunteer-staffed toll-free hotline available for emotional and educational support. Additionally, the Coalition also supports and funds educational, awareness and advocacy activities.
Patients, caregivers and families can rely on The Multiple System Atrophy Coalition for emotional support and compassion as they face this progressive disease; and they can know a growing organization with thousands of supporters is advocating for recognition and pushing to urgently find a cure.
Recent Donations
$ 250
With love and the fondest of memories
$ 500
$ 100
$ 500
Happy to support this great effort. Thank you, Emmalee.
$ 500
$ 100
Your dad had so much courage and he is dearly missed by all of us. He would be so proud of you, Emmalee. Love, Toni
$ 100
Keep going Emalee. Your dad touched all of us and we miss him too.
$ 100
You are Amazing Emmalle! ??
$ 250
emmalee, so happy you reached out. Your Dad was so proud of you.
$ 100
$ 100
Congratulations on this great accomplishment and purpose!
$ 200
Delighted to be able to contribute and to remember Andy in such a meaningful way.
$ 200
$ 150
What a great thing you are doing in memory of your father. Andy was a very special person and I am proud to call him a colleague and a friend.
$ 150
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$ 500
Emmalee, thanks for organizing these efforts. Yes, we are all missing Andy a little more each day. And also enjoying the wonderful memories. So nice to remember him with this good cause!
$ 100
Nice that you are raising money in Andy’s memory. He was courageous and stoic. We miss him
$ 1,000
What a worthy cause this is: finding the cause, the cure, and helping those stricken with MSA.
$ 200
Awesome work, Emmalee. What a great tribute! Glad we can participate.
$ 1,000
In memory of your loving Dad! We miss him every day!
$ 954
$ 30
$ 150
So sorry for the loss of your Dad, Emmalee. Thanks for helping others
$ 50
Love you, proud of you xxxx
$ 100
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$ 500
This. Is given in memory of my brave son Andy.
$ 150
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basecamp fundraiser
$ 250
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Basecamp fundraiser
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basecamp fundraiser
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Basecamp fundraiser
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BASECAMP FUNDRAISER
$ 500
There is no better way to honor Andy’s courageous fight than to help find a cure for MSA.
$ 600
You’re the best daughter any father has ever had.
$ 500
Anything to support MSA research and conquer this disease! Go Emm!
