I’m long overdue for some kind of an update so here goes:
First, I appreciate the messages & questions—I don’t spend a lot of time scrolling or engaging on social media in long times cuz #aintnobodygottimeforthat but it means the world to be checked in on.
I still haven’t had a biopsy of this little liver spot yet. The reason is kinda simple, kinda complex but it boils down to two main things:
1. I decided after lots of feeling it out, & doing further research that I want to go with a laparoscopic surgeon locally who will do the biopsy & also do a microwave ablation (use high temps to kill the tissue) of “spot”. This will get rid of it to give me hopefully NED for months or if I’m lucky? Years.
2. I couldn’t schedule that due to hospital schedule until mid November.????????
3. I wanted time to spend on preparing my body for what is non invasive as far as surgeries go, but surgery none the less.
So…this means I’ve been free of the worry feeling for the last few weeks since making this decision.
I’ve been learning & adapting with therapeutic keto, (heads up my macros are INSANELY high so if you’re asking what I’m doing, it prob won’t be something you’d want to do long term in such ratios). I’m finally monitoring for ketosis to aim for a 3.0 or higher ketone range. See. Told you. Intense.
But mostly? I’ve just been happy to separate myself from the stress & focus on the living.
It’s a funky strange duality that never goes away—the period of intense worry & build up leading up to learning new information, the wait in between for something new, ignoring it until you have to face it; it never really changes. The circumstances do, but the feelings & coping methods? I feel like I’m getting the hang of those.
The other fun piece of “new” I’ve been focusing on is energetic & sound healing with reiki & sound baths. It’s SUCH a powerful experience—thanks @barefootblondegirlaz for the sessions!
Okay, so now on to the weekend of my 31st birthday—feeling so insanely grateful to be alive, feeling amazing, & humbled to feel so loved by so many people.
Please D O N A T E even $5 if you are able to aid in research for #ocularmelanoma for my birthday ????
A Cure In Sight™ was founded with the mission to provide patient services for ocular melanoma eye cancer patients. Services are provided through building public awareness, educating OM patients and their caregivers, funding on-going eye cancer research and, by financially helping OM patients find and pay for the treatments they need. A Cure In Sight™ is an IRS approved 501 C(3) organization, EIN 46-1274306.
A Cure in Sight bringing clarity, support and compassion to the darkness of ocular melanoma / The mission of the Melanoma Research Alliance (MRA) is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas.
About the Organization:
A Cure in Sight (ACIS) supports families who have ocular melanoma and focuses on research for a cure. Through public and private partnerships, we provide clear and reliable education information and access to a support community for patients and their caregivers. ACIS educates the public about ocular melanoma, treatment options, and clinical trials that may improve a patient’s prognosis, making it less overwhelming.
ACIS is dedicated to ongoing research. We know we can accelerate viable research projects that otherwise would stall and not be completed, missing opportunities to advance research for effective treatments and possibly a cure.
The Melanoma Research Alliance (MRA) is the largest non-profit funder of melanoma research. Since its founding in 2007, MRA has committed $143 million in funding to advance our understanding of this disease. MRA funds projects in the areas of prevention, diagnosis, and treatment, with the majority of funding allocated for melanoma treatment.
MRA’s ultimate goal is to find a cure by funding the most promising melanoma research worldwide that will accelerate progress and improve outcomes for patients and all who are at risk. Thanks to the generous support of its founders, Debra & Leon Black, 100% of every donation to MRA goes directly to melanoma research.
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