MEET ME IN ST. LOUIS
teamwork makes the dream work
Meet Me in St. Louis
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READ MORE ABOUT THE CAUSE
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About:
The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016. We strive to raise educational awareness and funding for research so that every person with HADDS, has a supportive community, is able to reach their full potential, can access the most current educational/therapy materials and have access to the most current research. It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy. We are ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally.
Mission:
To enhance the lives of people with HADDS through research, education, support and advocacy.
TEAM MEMBERS
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Julie Dirnbeck (ADMIN)
$ 530 raised of $ 500
86 miles completed of 100
Jonathan Dirnbeck
$ 130 raised of $ 250
110 miles completed of 25
David GSell
$ 100 raised of $ 100
1 miles completed of 100
$ 100 raised of $ 100
12 miles completed of 100
Nancy Dirnbeck
$ 100 raised of $ 500
18 miles completed of 100
Michael G’Sell
$ 3,215 raised of $ 500
304 miles completed of 500
Elise Schaller
$ 130 raised of $ 500
6 miles completed of 100
Lisa Schwarz
$ 55 raised of $ 25
217 miles completed of 100
Matt Dirnbeck
$ 30 raised of $ 500
0 miles completed of 100
Matt Dirnbeck
$ 30 raised of $ 500
0 miles completed of 3
Rebecca Cray
$ 50 raised of $ 100
84 miles completed of 100
Alex Assaf
$ 30 raised of $ 500
31 miles completed of 100
CONTRIBUTORS
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$ 1,270
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