FRIENDS OF THEO
teamwork makes the dream work
Friends of Theo
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"Theophilus" means 'loved by God' or 'friend of God', and Theo lives up to the meaning of his name! Theo loves others and is loved by so many. His primary motivation is engaging with people; and when he does, those who he encounters feel seen, known and loved by him. Theo has friends from all over, and as "Friends of Theo", we are so happy to support him and his Xia-Gibbs buddies through this run.
READ MORE ABOUT THE CAUSE
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About:
Xia-Gibbs Society is a global, US-based non-profit (501c3) organization.
Our mission is to provide support to and advocate for those with Xia-Gibbs Syndrome and their families and to foster hope for the future. The Society also aims to raise awareness about Xia-Gibbs Syndrome among the medical and general community and to support, fund and promote scientific and medical research.
Our organization is made up of a Board of Directors, a Scientific Advisory Board and a few staff members, all of whom are volunteers. Together we represent our global community, which we engage with through our social media page and private family and community groups.
Our programs include Family Conferences and Research Grants.
Xia-Gibbs Society is a member of the Global Genes Global Advocacy Alliance and the National Organization for Rare Disorders (NORD).
Mission:
Xia-Gibbs Society is a not-for-profit corporation formed in the USA for charitable purposes. Our mission is to support and advocate for those with Xia-Gibbs Syndrome (XGS) and their families, to raise awareness and to assist with scientific and medical research.
TEAM MEMBERS
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Joyce Downer (ADMIN)
$ 255 raised of $ 100
0 KM completed of 5
Joshua Downer
$ 550 raised of $ 500
0 KM completed of 2
Jen Thompson
$ 60 raised of $ 500
108 KM completed of 75
Louise Baer
$ 180 raised of $ 200
0 KM completed of 5
Heather Wilson
$ 250 raised of $ 250
0 KM completed of 5
Ashley Bungay
$ 60 raised of $ 100
0 KM completed of 5
Carol Lomas
$ 110 raised of $ 100
0 KM completed of 5
Elaine Locke
$ 35 raised of $ 100
0 KM completed of 5
Jason Dockeray
$ 50 raised of $ 100
0 KM completed of 5
Destiny Grove
$ 10 raised of $ 100
0 KM completed of 5
Jennifer Henson
$ 35 raised of $ 100
21 KM completed of 5
Dawn Butt
$ 110 raised of $ 100
9 KM completed of 5
margaret mcleod
$ 35 raised of $ 100
15 KM completed of 5
Jessica Downer
$ 35 raised of $ 100
0 KM completed of 5
Kailey Gillis
$ 10 raised of $ 100
16 KM completed of 5
CONTRIBUTORS
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