FRESENIUS-KABI
teamwork makes the dream work
Fresenius-Kabi
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READ MORE ABOUT THE CAUSE
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About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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Jacinda Collins (ADMIN)
$ 0 raised of $ 100
19 miles completed of 100
Lindsey Sterner
$ 0 raised of $ 100
100 miles completed of 100
AnnMarie Salviski
$ 25 raised of $ 100
17 miles completed of 100
Ashley Griffin
$ 0 raised of $ 100
84 miles completed of 100
James Teator
$ 0 raised of $ 100
4 miles completed of 100
Deb Puglisi
$ 0 raised of $ 100
62 miles completed of 100
Deborah McHugh
$ 0 raised of $ 100
192 miles completed of 100
Lisa Dudley
$ 0 raised of $ 100
0 miles completed of 100
Lisa Levisy-Potwora
$ 20 raised of $ 100
31 miles completed of 100
Lisa Lewandowski
$ 0 raised of $ 100
0 miles completed of 100
Anthony Pavell
$ 0 raised of $ 100
0 miles completed of 100
Emiluz Biehls
$ 0 raised of $ 100
0 miles completed of 100
CONTRIBUTORS
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$ 25
$ 20






