CSL BEHRING-PLASMANIAN DEVILS
teamwork makes the dream work
CSL Behring-Plasmanian Devils
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READ MORE ABOUT THE CAUSE
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About:
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and their caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.
Mission:
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.
TEAM MEMBERS
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Julia Pack (ADMIN)
$ 0 raised of $ 100
20 miles completed of 100
Renee Raiford
$ 0 raised of $ 100
33 miles completed of 100
Julia pack
$ 0 raised of $ 100
0 miles completed of 100
Bill Stokes
$ 0 raised of $ 100
278 miles completed of 100
Tag McCown
$ 0 raised of $ 100
32 miles completed of 100
Brandi Dugger
$ 0 raised of $ 100
214 miles completed of 100
Christopher Blair
$ 0 raised of $ 100
117 miles completed of 100
Frank Horecny
$ 0 raised of $ 100
168 miles completed of 100
