Xia-Gibbs Society is raising desperately needed funds for research into Xia-Gibbs Syndrome (‘XGS’), a rare genetic condition affecting children and adults across the globe.
Scientists at Baylor College of Medicine in Houston are studying XGS and the AHDC1 gene which causes it. As they continue with their research we hope to learn more answers and develop targeted therapies for the syndrome.
Our aim is to raise $10,000 towards our ongoing Research Grant program to support this work. We are the only dedicated source of funding into Xia-Gibbs Syndrome research, so please help us reach our goal!
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ABOUT THE ORGANIZATION
XIA-GIBBS SOCIETY INC.
Xia-Gibbs Society is a not-for-profit corporation formed in the USA for charitable purposes. Our mission is to support and advocate for those with Xia-Gibbs Syndrome (XGS) and their families, to raise awareness and to assist with scientific and medical research.
All funds will be used to support our programs, including Family Conferences and our annual Research Grant.
FREQUENTLY ASKED QUESTIONS
What is Charity Footprints?
Charity Footprints is a social enterprise that connects fitness and charitable giving. We empower people just like you, to get fit & give back.
Our Virtual Races allow non-profits to challenge their patrons to run, walk or ride and raise funds just as they would in a fundraising walkathon. The best part - charities save over 45% in event and logistical costs. So, the dollars that you pay to register or fundraise, go farther.
What is the campaign registration fee?
Campaign registration fee is the amount that you'll need to pay to enroll in this virtual race. This fee (less transaction charges) will go to the non-profit running this campaign as a donation.
The registration fee along with the funds raised through your individual fundraising page will enable the non-profit to fund various programs and pursue their organization's mission.
How can I create my fundraising page?
Well, you wouldn't have to create a separate fundraising page. Once you register for this campaign, we'll give you the link to your fundraising page.
While registering for the campaign, select the team you'd like to join or create a new team and invite others to #GetFitGiveBack with you. If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.
I am an international donor (non-US), what are my donation charges and tax-deductibility?
All donations are made in US dollars, so the donations may be levied an exchange rate fee via your bank. Donors will want to connect with their bank to determine exactly what that fee may be. Additionally, international donors will need to reach out to a tax professional to discuss if and how tax deductibility will apply to their donation.
Who can sponsor my fundraising efforts?
The short answer is - everyone. The fundraising research shows that the number one reason for people not donating is that they weren't asked to.
That said, there are things you can do to attract people to sponsor you. Adding a picture to your fundraising page, telling potential donors why this cause is so personal to you, sharing your fundraising page on social media, email, and chat groups.
Last, if your employer has a gift matching program, check with the human resources department to support your favorite cause as well.
Who can I contact if I need help?
You can contact us any time if you need help. We love hearing from our users so please don't hesitate to write to us about issues, suggestions, or to just say hi. You can also contact the non-profit administrator directly if you would like.
How do I change or switch my team?
If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.
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