Come along with as we cross the US for the
Second Annual XLH Cross Country Challenge 2021!
Beginning June 23rd, we will travel from New Haven, CT and end on or around August 3rd in San Francisco, CA. Even though we cannot be together in person, we want you to be part of the journey every step of the way. As a participant, you will meet other XLHers and their families en route in addition to physicians and researchers who are dedicated to the patient community.
Participants will compete in teams of 10, but you may register as an individual, family or all your team members at once (email us to register your entire team for a discounted price: elizabeth.olear@xlhnetwork.org; individual and family registration are already built into the registration link). If you register as an individual and do not have a team, we will gladly introduce you to one that you can join.
There are 3 ways to earn Footprint points in this year’s challenge – Footprint points determine your individual and your team’s overall score. The three ways are: Miles for physical activities that move you across the country, Activity Points for non-physical activities (see our “Go The X-tra Mile Activity Chart” below), and Fundraising Dollars. All 3 contribute to your total Footprint points, which drive the Leaderboard.
To earn Miles, fitness activities like running, walking and biking will be assigned 50 Footprint points for every mile completed. We have made it easier this year to track miles. Sync your personal fitness devices directly to the race.
To earn Activity Points for non-physical activities, refer to the activity chart and manually record via the drop down menu on the race page.
For Fundraising, each dollar raised will be counted as dollars towards our Fundraising Goal ($25,000 for the Network’s 25thAnniversary).
In addition, you will receive Activity Points (for completing a non-physical activity; activities indicated with an * are ONE TIME activities and you can only earn those Activity Points once during the CCC) and for each dollar contributed, you will receive 25 Footprints. Raising money for your team either in the form of fundraising (you can ask friends and family to sponsor each mile or activity) or personal donations leads to multiple avenues to earning Footprints and is a great way to help move your team up the leaderboard.
To cross the United States, this challenge is 3,000 miles long. We have 6 weeks from start to finish, which is an average of 500 miles per team, per week. This is the same distance as last year's race but only half the time to cross the United States.
The team that has the most Footprints at the end, wins the challenge. There will also be an individual winner for the person who has the most Footprints at the end of the challenge. We will be having an informational meeting to review these rules and details on June 23, 2021, at 8:00 p.m. Eastern Time.
In the meantime, feel free to send any questions our way:jobeth.souza@xlhnetwork.org
Good luck teams and thank you for participating!
COMPLETED: 193,600 points
TARGET: 250,000 points
COMPLETED: 15,050 miles
TARGET: 42,288 miles
RAISED: $ 27,876
TARGET: $ 25,000
You must go on adventures to find out where you truly belong. ~ Sue Fitzmaurice
Come join us and leave your footprints from New Haven to San Francisco!
Register for the campaign and set your fitness & fundraising targets.
Share your story and raise funds & awareness.
Track workouts anywhere & anytime and complete goal.
The mission of the XLH Network is to promote XLH awareness and education for affected families, medical professionals, and the community at-large; to support physicians and other providers of medical care for better diagnosis and treatment; to create resources and a community for affected individuals and their families so they can understand and cope with the complications of the disease; and to foster the search for a cure.

Read more about the organization >>

How Your Participation Helps
Your participation and voluntary donations will be instrumental in helping us to achieve our goals of increasing awareness for this rare disease and fundraising for future medical developments.
What is Charity Footprints?

Charity Footprints is a social enterprise that connects fitness and charitable giving. We empower people just like you, to get fit & give back.

Our Virtual Races allow non-profits to challenge their patrons to run, walk or ride and raise funds just as they would in a fundraising walkathon. The best part - charities save over 45% in event and logistical costs. So, the dollars that you pay to register or fundraise, go farther.

What is the campaign registration fee?

Campaign registration fee is the amount that you'll need to pay to enroll in this virtual race. This fee (less transaction charges) will go to the non-profit running this campaign as a donation.

The registration fee along with the funds raised through your individual fundraising page will enable the non-profit to fund various programs and pursue their organization's mission.

How can I create my fundraising page?

Well, you wouldn't have to create a separate fundraising page. Once you register for this campaign, we'll give you the link to your fundraising page.

How will I track my distance?

You can track your workouts by setting up your devices (Fitbit, Garmin, Apple Watch, Google Fit, Misfit, Strava), or download the Charity Footprints' iOS or Android app and track your workouts toward this campaign.

If you workout indoors (treadmill, elliptical, stationary bike etc.), you can upload your workouts here.

How do I join a team on this campaign?

While registering for the campaign, select the team you'd like to join or create a new team and invite others to #GetFitGiveBack with you. If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.

I am an international donor (non-US), what are my donation charges and tax-deductibility?

All donations are made in US dollars, so the donations may be levied an exchange rate fee via your bank. Donors will want to connect with their bank to determine exactly what that fee may be. Additionally, international donors will need to reach out to a tax professional to discuss if and how tax deductibility will apply to their donation.

Who can sponsor my fundraising efforts?

The short answer is - everyone. The fundraising research shows that the number one reason for people not donating is that they weren't asked to.

That said, there are things you can do to attract people to sponsor you. Adding a picture to your fundraising page, telling potential donors why this cause is so personal to you, sharing your fundraising page on social media, email, and chat groups.

Last, if your employer has a gift matching program, check with the human resources department to support your favorite cause as well.

Who can I contact if I need help?

You can contact us any time if you need help. We love hearing from our users so please don't hesitate to write to us about issues, suggestions, or to just say hi. You can also contact the non-profit administrator directly if you would like.

How do I change or switch my team?

If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.