The Kira Spedale Foundation and the William Guy Forbeck Foundation are collaborating in the fight against DIPG. Kira Spedale was lost to this dreadful disease in 2014. The survival rates for this disease have not improved and it is still 100% deadly. It is time to push research forward.
The Forbeck Foundation has hosted scientific forums since 1984 when Billy Guy Forbeck died of a rare childhood form of cancer. These 2 organizations will now work together to push research forward in a consensus meeting on DIPG that will be held in Lake Geneva, Wisconsin, October 3rd-6th, 2019.
Join the walk around the lake to support this endeavor and continue the legacy of Kira Spedale, Billy Guy Forbeck and all the children lost to these deadly forms of pediatric cancer. It is also Childhood Cancer Awareness month in September.
The actual walk will be held on Sunday, October 7th in Lake Geneva, Wisconsin.
http://www.kiraspedalefoundation.com/walk-the-lake-for-kira-faith
The virtual race allows all to participate no matter time, geographical or physical constraints. Commit to the 21 miles. You can do it in 1 day or you can do it over the next month. You can climb the mountains of Colorado or walk the streets of Chicago to accrue your miles. So sign up today!
Track workouts anywhere & anytime and complete goal.
ABOUT THE ORGANIZATION
KIRA SPEDALE FOUNDATION
The Kira Spedale Foundation will raise funds and awareness to combat DIPG (Diffuse Intrinsic Pontine Glioma), a rare inoperable brainstem tumor that attacks children.
The funds will support a scientific Forum on DIPG that will be held in Lake Geneva, Wisconsin on October 3-6, 2019. This meeting will be chaired by Oren Becher, MD of Northwestern University and Cynthia Hawkins, MD, PhD of The Hospital for Sick Kids of Toronto. Participants will be from around the world, a mix of MDs and PhDs and a mix of scientific backgrounds. Guests, including all those who participate in the walk in person or virtually, will be invited to the closing dinner of this meeting on October 5th, 2019.
FREQUENTLY ASKED QUESTIONS
What is Charity Footprints?
Charity Footprints is a social enterprise that connects fitness and charitable giving. We empower people just like you, to get fit & give back.
Our Virtual Races allow non-profits to challenge their patrons to run, walk or ride and raise funds just as they would in a fundraising walkathon. The best part - charities save over 45% in event and logistical costs. So, the dollars that you pay to register or fundraise, go farther.
What is the campaign registration fee?
Campaign registration fee is the amount that you'll need to pay to enroll in this virtual race. This fee (less transaction charges) will go to the non-profit running this campaign as a donation.
The registration fee along with the funds raised through your individual fundraising page will enable the non-profit to fund various programs and pursue their organization's mission.
How can I create my fundraising page?
Well, you wouldn't have to create a separate fundraising page. Once you register for this campaign, we'll give you the link to your fundraising page.
How will I track my distance?
You can track your workouts by setting up your devices (Apple Watch), or download the Charity Footprints' iOS or Android app and track your workouts toward this campaign.
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If you workout indoors (treadmill, elliptical, stationary bike etc.), you can upload your workouts here.
I am an international donor (non-US), what are my donation charges and tax-deductibility?
All donations are made in US dollars, so the donations may be levied an exchange rate fee via your bank. Donors will want to connect with their bank to determine exactly what that fee may be. Additionally, international donors will need to reach out to a tax professional to discuss if and how tax deductibility will apply to their donation.
Who can sponsor my fundraising efforts?
The short answer is - everyone. The fundraising research shows that the number one reason for people not donating is that they weren't asked to.
That said, there are things you can do to attract people to sponsor you. Adding a picture to your fundraising page, telling potential donors why this cause is so personal to you, sharing your fundraising page on social media, email, and chat groups.
Last, if your employer has a gift matching program, check with the human resources department to support your favorite cause as well.
Who can I contact if I need help?
You can contact us any time if you need help. We love hearing from our users so please don't hesitate to write to us about issues, suggestions, or to just say hi. You can also contact the non-profit administrator directly if you would like.
