Congratulations on choosing to celebrate this year’s hae day :-) by joining us in Stepping Forward Together!

HAEA’s Stepping Forward Together Virtual Walk is part of our How to HAE (Host A “Virtual” Event) campaign, whereby we invite patients, caregivers, family members, friends, medical professionals, and industry partners to come together and celebrate our lives beyond HAE through virtual activities. In the coming weeks, many members of the HAE community will put their creative and technological know-how to use as they raise awareness, and fundraise through online and virtual community encounters.

For questions on the Stepping Forward Together Virtual Walk, please reach out to Mike Mallory, Patient Advocate via email at mikemallory@haea.org.

The Stepping Forward Together initiative is a month-long community virtual walk, run, or ride that allows you to log in your steps and share your exercise goals directly on our site! By participating, you will help us reach our target of 25,000 miles by May 31, 2020. If you prefer other forms of exercise like yoga, swimming or jumping rope, join us too! Whatever your activity is, you can participate by tracking the steps (or converted steps) through this website and/or the easy-to-use, Charity Footprints App. The app will enable you to join teams, update your steps and upload photos for awards! Whatever activity you do, we want you to track your steps to help us reach our 25,000 mile goal to spread HAE Awareness! You can also pair your FitBit, Apple Watch or Garmin to the app to track your steps!

Is there a cost to participate?
There is no cost to participate in the Stepping Forward Together Virtual Walk! You can participate as an individual or a team, and can share your journey on the website or by using the Charity Footprints App. However you choose to participate, be sure to share it with your friends and family! Individuals and Teams will have the opportunity to fundraise through the website.

How do I share my progress?
You can submit photos to our campaign scrapbook page, and help recruit friends and family to participate! You can also start a team, and invite your friends and family to join your team to reach your step and fundraising goals!

How do other activities convert to steps?
We realize that not every activity counts as steps, and not everyone has a step tracker. Below is a chart on other activities and how to transfer them to steps if you don't have a tracker to pair. Is your activity not listed below? Enter the number of steps you feel that activity is worth!

Will there be awards?
Well, of course! We want everyone to have fun with this event, and have outlined some fun award categories below.

PHOTO-based awards:
Each week, a photo challenge will be posted. The winner will be selected by our elite panel of judges based on photos shared in the Charity Footprints Scrapbook. Each photo-based winner will be sent a swag bag of fabulous HAEA goodies! Be sure to add these hashtags when posting so we can sort your photos:

Most Scenic Photo Challenge: #haedayScenic
hae day :-) Spirit Challenge: #haedaySpirit
Crazy Costume Challenge:. #haedayCostume
Family Photo Challenge:. #haedayMyFamily
COMPLETED: 15,236 miles
TARGET: 25,000 miles
RAISED: $ 8,336
TARGET: $ 10,000
You must go on adventures to find out where you truly belong. ~ Sue Fitzmaurice
Come join us and leave your footprints to support this great cause!
Register for the campaign and set your fitness & fundraising targets.
Share your story and raise funds & awareness.
Track workouts anywhere & anytime and complete goal.
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

Read more about the organization >>

Your charitable contribution to the US HAEA helps our organization provide a wide range of services to patients and their families. With your support, we can strengthen our services and programs, improve HAE education and awareness, and expand HAE research. Contributions to the HAEA are tax-deductible.

Fundraising for the Stepping Forward Together Virtual Walk will support three of our main programs:

1. The Pam King HAEA Scholarship Program, which offers college tuition grants to HAE patients

2. The Chris Whalen Compassion Fund, which offers financial assistance for patients in need who must travel to see an HAE medical specialist

3. The HAE Research for a Cure, which funds the HAEA Scientific Registry and research initiatives
What is Charity Footprints?

Charity Footprints is a social enterprise that connects fitness and charitable giving. We empower people just like you, to get fit & give back.

Our Virtual Races allow non-profits to challenge their patrons to run, walk or ride and raise funds just as they would in a fundraising walkathon. The best part - charities save over 45% in event and logistical costs. So, the dollars that you pay to register or fundraise, go farther.

What is the campaign registration fee?

This campaign is free to participate in.

However, we encourage you to donate optional/suggested amount during registration or you can always donate any amount on your fundraising page after the registration.

How can I create my fundraising page?

Well, you wouldn't have to create a separate fundraising page. Once you register for this campaign, we'll give you the link to your fundraising page.

How will I track my distance?

You can track your workouts by setting up your devices (Fitbit, Garmin, Apple Watch, Google Fit, Misfit, Strava), or download the Charity Footprints' iOS or Android app and track your workouts toward this campaign. ?>

If you workout indoors (treadmill, elliptical, stationary bike etc.), you can upload your workouts here.

How do I join a team on this campaign?

While registering for the campaign, select the team you'd like to join or create a new team and invite others to #GetFitGiveBack with you. If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.

I am an international donor (non-US), what are my donation charges and tax-deductibility?

All donations are made in US dollars, so the donations may be levied an exchange rate fee via your bank. Donors will want to connect with their bank to determine exactly what that fee may be. Additionally, international donors will need to reach out to a tax professional to discuss if and how tax deductibility will apply to their donation.

Who can sponsor my fundraising efforts?

The short answer is - everyone. The fundraising research shows that the number one reason for people not donating is that they weren't asked to.

That said, there are things you can do to attract people to sponsor you. Adding a picture to your fundraising page, telling potential donors why this cause is so personal to you, sharing your fundraising page on social media, email, and chat groups.

Last, if your employer has a gift matching program, check with the human resources department to support your favorite cause as well.

Who can I contact if I need help?

You can contact us any time if you need help. We love hearing from our users so please don't hesitate to write to us about issues, suggestions, or to just say hi. You can also contact the non-profit administrator directly if you would like.

How do I change or switch my team?

If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.