Tatiana Tims's Fundraiser
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My Appeal
As I continue my work in the Nonprofit world, it has opened my eyes to the demand that is out there for illnesses & causes. Unless we use our voices to become advocates for the organizations we hold near and dear to our hearts, there will be no advancements, no programs, no help for those who need it the most. I am fortunate enough to be a healthy person, so I'll do what I can to take care of those who may not be as fortunate.
Please join me in supporting the Snowney family, who's daughter Sabina suffers from EB.
Epidermolysis bullosa (EB) is the name for a group of rare inherited skin disorders that cause the skin to become very fragile. Any trauma or friction to the skin can cause painful blisters. Research it, then let me know if your heart doesn't break for those who are affected by EB.
As others have supported my causes, I'll support others. Thank you for taking the time to read this, and if you feel inclined to donate it would be greatly appreciated by me, the Snowney, and the EB community as they search for a cure.
Love, light, and compassion to you all, my friends.
My Progress
Tatiana is running 20 miles and raising funds for EB Research Partnership. Please show your support and donate generously.
38.1 MILES done
20 miles
My Cause
The Mission: EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
About the Organization:
Founded in 2010 by a group of dedicated parents along with Jill and Ed Vedder (Pearl Jam), EB Research Partnership (EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP utilizes an innovative business model of venture philanthropy. When making a grant to a research project we retain the added upside of generating an additional revenue stream if the therapy or product is commercially successful, and use the return on investment to fund additional EB research.
EBRP is committed to the highest financial responsibility, directing nearly 90% of revenue to research and related programming and achieving the highest rating of the Platinum Seal of Transparency from GuideStar.
By partnering with us, the Hearst Foundation will greatly further our mission to develop life-saving treatments for EB and be part of the team that will cure a diabolical disease.
Recent Donations
SI
$ 100
Good luck in supporting a fantastic cause!
TT
