If the government won't fund Trikafta, we just need to go and get it ourselves.....well at least raise more awareness so the government will approve Trikafta on the PBS.
Join us on the journey through the rest of May (Cystic Fibrosis Month) by riding, running, walking, paddling…..even crawling if need be, and track your KMs. We are going to Boston to bring Trikafta to Australia. We will do this by:
- Travelling (theoretically) from Newcastle (John Hunter Hospital) to the Vertex headquarters in Boston, Massachusetts. Approximately 32,000km roundtrip.
- Spreading the word about the Sweat4CF mission on all of your social media accounts by sharing this campaign
- Exercise as often as possible and have your social network support you by sharing the Sweat4CF website so more people become aware and get involved. We need your help to make Trikafta available in Australia to improve the lives of thousands of Australians with Cystic Fibrosis.for this worthy cause.
- Take as many pictures as possible of your progress – include the #SWEAT4CF posting on social media
COMPLETED: 21,693 miles
TARGET: 19,876 miles
You must go on adventures to find out where you truly belong. ~ Sue Fitzmaurice
Come join us and leave your footprints by traveling from Newcastle to Boston and back!
Register for the campaign and set your fitness targets.
Share your story.
Track workouts anywhere & anytime and complete goal.
Our daughter Mia Warren was diagnosed with Cystic Fibrosis at 6 weeks old. Mia is now 14 and her condition continues to deteriorate. Mia's condition has been worsening by the year and her ''normal'' lung function now averages between 50-60% - when she is sick Mia has a lung function below 40% and spends weeks in hospital at a time.

Mia's fight against CF is similar to thousands of other sufferers here in Australia.

CF sufferers rely on drugs to improve their quality of live. Trikafta is a groundbreaking drug which has the ability to change lives. It is produced by Vertex which is based in Boston, Massachusetts.

Compared to other drugs, the difference Trikafta brings to the fight against Cystic Fibrosis is its wide-ranging benefits for the majority of people suffering from the disease. Trikafta will benefit anyone with one gene mutation of deltaF508 - over 90% of people with CF have at least one gene mutation deltaF508.

Studies have shown that Trikafta improves lung function by close to 20% on average. Importantly, sustained improvement in lung function also increases live expectancy considerably. Some of those who have been on the trial of the Trikafta have been able to come off the lung transplant list.

Unfortunately, in April 2021, Trikafta was not recommended to be placed on the PBS (Pharmaceutical benefits scheme) by the Pharmaceutical Benefits Advisory Committee. One years supply of Trikafta for one CF patient would cost $410,000 per year.

We need more pressure on the government and Vertex to make Trikafta available and you can help by raising awareness.

Read more about the organization >>

How Your Participation Helps
By getting involved and sweating it up for this life changing cause, you will help show the government and Vertex that you support the subsidisation of Trikafta through the PBS.

Sharing your story and the difficulties CF sufferers face day to day will help us reach the decision makers eg Government bodies and Vertex.
What is Charity Footprints?

Charity Footprints is a social enterprise that connects fitness and charitable giving. We empower people just like you, to get fit & give back.

How will I track my distance?

You can track your workouts by setting up your devices (Fitbit, Garmin, Apple Watch, Google Fit, Misfit, Strava), or download the Charity Footprints' iOS or Android app and track your workouts toward this campaign.

If you workout indoors (treadmill, elliptical, stationary bike etc.), you can upload your workouts here.

How do I join a team on this campaign?

While registering for the campaign, select the team you'd like to join or create a new team and invite others to #GetFitGiveBack with you. If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.

Who can I contact if I need help?

You can contact us any time if you need help. We love hearing from our users so please don't hesitate to write to us about issues, suggestions, or to just say hi. You can also contact the challenge administrator directly if you would like.

How do I change or switch my team?

If you want to join a team (or create your team) after registration, login to the campaign site and you would find a link to edit "My Team" in the menu under your profile in the header.