ABOUT THE ORGANIZATION
We know the patient because we are the patient
NBCA’s founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop hosted by The Centers for Disease Control and Prevention 17 years ago, in 2003. Sharing a common concern, they resolved to build a national organization to advocate for — and to educate and support — those affected by clotting disorders. Each Board member at that time, and most still today, have been
touched personally by blood clots, or such genetic variants as the factor V Leiden gene mutation.
The National Blood Clot Alliance (NBCA) is a patient-led, voluntary health advocacy organization. The organization is structured to combine the unique perspectives of healthcare providers, individuals afflicted with clotting disorders, and community leaders who are passionate about this healthcare
NBCA is patient-led with guidance from nationally recognized experts in thrombosis and thrombophilia. For NBCA, this is personal. 80% of the Board of Directors is either a patient or a family member of a patient. 60% of professional staff are also blood clot patients. NBCA’s Medical and Scientific Advisory Board (MASAB) includes many of the nation’s foremost experts on blood clots and blood clotting disorders.
The National Blood Clot Alliance (NBCA) is a 501(c)(3), non-profit, voluntary health organization dedicated to advancing the prevention, early diagnosis, and successful treatment of life-threatening blood clots such as deep vein thrombosis, pulmonary embolism, and clot-provoked stroke.